DialysisDiaries
-
NeuroDivine Update

A quieter day from me. Dialysis was tougher than expected—my blood pressure dropped sharply, and we couldn’t remove as much fluid as planned. It looks like I’ve put on a bit of weight, which explains the hand and leg cramps even without reaching “dry weight”. So while we tried to regulate the BP, I was Continue reading
-
Machines. Mercy. Meaning.

In the long, measured hours of dialysis, I began to notice how healing is carried not only by machines and medicine, but by the people who sit beside us, the families who steady us, and the landscape we carry within. This hymn‑poem grew from that stillness—a way of naming the courage found in ordinary care,… Continue reading
AnglicanTradition, Autism, AutisticFaith, bible, Christianity, ChronicIllness, ChronicIllnessCommunity, ChronicIllnessFaith, CompassionInCare, Contemplation, ContemplativeCare, ContemplativePrayer, Dialysis, DialysisAndDignity, DialysisDays, DialysisDiaries, DialysisJourney, DialysisLife, DialysisSpirituality, EmbodiedPrayer, Faith, FaithAndIllness, FaithInAction, FaithInTheEveryday, FindingConnection, god, HealingPrayer, health, healthcare, HeldInLove, Hymnody, InclusiveChurch, InclusiveSpirituality, IrishAnglicanVoice, IrishSpirituality, jesus, life, LifeOnDialysis, LiturgicalLife, LiturgicalReflection, LiveWithADisability, NeurodivergentFaith, NeuroDivine, NewHymn, NewHymns, NewSong, PatientSupport, PatientVoices, poetry, Prayer, QuietCourage, QuietMoments, ResilientSpirit, Routine, SacredSpaces, ScriptureAndStillness, SmallMercies, Spirituality, SpiritualJourney, SpiritualReflection, SupportSystems -
Chosen and Kept: The Sacred Liturgy of Presence and Care

In the quiet hum of the dialysis unit, where machines pulse with steady rhythms and time is measured in millilitres, Declan and Marcus find a sanctuary. Their story is not one of mere survival but of abiding joy, friendship, and the sacred dance of queer kinship amidst constraint. Dialysis life imposes limits—fluid restrictions, dietary rules, Continue reading
-
Coat. Bear. Grace.

Reflections from the dialysis chair—on presence, partnership, and the stories still unfolding. Dialysis takes it out of you. The hours are long, the movement minimal, and the body feels like it’s been borrowed by a machine. For me—an autistic gay Irishman living in Kildare and receiving treatment in Port Laoise—it’s not just about the treatment. Continue reading
-
Bank Holiday Blues

When the timetable shifts, so does the soul. A reflection on dialysis, delays, and small mercies. Continue reading
AccessibleTravel, BankHolidayBlues, ChronicIllnessCommunity, CompassionInCare, ContemplativeCare, Dialysis, DialysisDiaries, DialysisJourney, DialysisLife, FaithInTheEveryday, FreeTravelPass, IarnródÉireann, IrishRailJourneys, LiveWithADisability, QuietMoments, SmallMercies, Travel, TravelByTrain, TravelWithPurpose -
Morning Mercy. Two Cats and a Quiet Question

I woke slowly this morning, not to alarms or aches, but to the gentle weight of love. Niamh, our white cat, had curled herself close to my chest—near enough to feel my heartbeat, wise enough to stay clear of the dialysis line. Her presence was soft, deliberate, like a prayer that knows where to land. Continue reading

